Metaforix@Health - Medicare Resources Online
By Lois C. Ambash, Published on April 26, 2004
Lois C. Ambash is President and Chief Infomaven of Metaforix Incorporated, whose services include organizational assessment and planning activities, web site and e-letter content development, and design and delivery of customized workshops for healthcare, education, business, and community organizations. Lois holds a PhD in American Culture and Writing, Master’s degrees in Library/Information Science and Public Policy, and a Bachelor’s degree in English. She serves on the board of the Internet Healthcare Coalition and on URAC’s Health Web Site Accreditation Committee, and is a frequent writer and speaker on e-health, Internet research, business communications, and organizational culture. Read or subscribe to Lois’s blog, Metaforix@.
Medicare is a topic that has the potential to burst into the headlines at any
moment. Not only does Medicare touch virtually every American family and
exemplify many aspects of our more global healthcare crisis. The program also
highlights key demographic trends, social policy issues, economic realities, and
political values.
Ever since last summer, when
debate on prescription drug benefits for seniors swept Washington in earnest,
barely a week has gone by without a major Medicare policy initiative, study,
accusation, or potential scandal. The initial aspects of last year’s “Medicare
Prescription Drug, Improvement, and Modernization Act” – prescription drug
discount cards and new benefits for low-income seniors – are set to kick in on
June 1. The Presidential campaign is in full swing. So, now seems an appropriate
time to review some of the many online Medicare resources. The following list
includes primarily free resources that emphasize law, policy, and program
implementation.
Law and Legislative History
The entire February issue of
Congressional Digest
(vol. 83, issue 2) is devoted to a brief, balanced summary of MMA. Highlights
include a legislative chronology, a program summary, a glossary, fiscal data and
projections, a summary of the conference committee report, and selected excerpts
from the debate. I could access this freely online only by using my New York
Public Library card. Perhaps you have Congressional Digest in your own
library or can access it in similar fashion.
Cornell University’s Legal Information
Institute has an annotated version of the
original Medicare
legislation, including updates, regulations, and relevant court decisions.
The 2003 updates have not yet been incorporated.
The National Academy of Elder Law Attorneys
site offers a “snapshot”
of MMA, one of a number of such summaries available on various trade
association, professional society, and policy sites. The snapshot links to an
annotated
AARP analysis of the transitional assistance program for low-income
beneficiaries that takes effect on June 1, a year and a half earlier than the
program as a whole. To view a summary intended for a different audience, visit
the “Policy and Advocacy” page on the web site of the
American Academy of Family Physicians. The Center for Studying Health System
Change (HSC) is a nonpartisan health policy think tank and research center.
Take a look at its
Medicare page for links to tables, articles, and issue briefs that encompass
valuable charts and tables. HSC’s central focus with respect to Medicare is the
“effect of payment policy on providers and health plans.” In addition, see
Insurance Coverage and
Costs for analyses of “private and public insurance coverage, the uninsured
and the cost of health care” and of “incremental public insurance expansions.” Georgetown University’s
Center on an Aging
Society is a “non-partisan public policy institute that fosters critical
thinking about the implications of an aging society.” Although a number of
studies available on the site are specifically focused on Medicare, the site has
a more diffuse and inclusive approach that places Medicare in a broader cultural
and societal context. The Center on Budget and Policy
Priorities “conducts research and analysis” at the federal and state levels
“to inform public debates over proposed budget and tax policies and to help
ensure that the needs of low-income families and individuals are considered in
these debates.” While its mission gives the Center a distinct point of view,
articles such as the newly posted “Understanding
the Social Security and Medicare Projections” are useful examples of how
policy orientation may affect one’s interpretation of statistical data. The Century Foundation’s Medicare
Watch is a policy think tank whose site features studies, news items, and
policy analyses with a decidedly progressive slant. In contrast, see the
Cato Institute’s “Health Studies” resources
on Medicare for a
libertarian point of view. The Dartmouth Atlas of Health Care
is a project that “brings together researchers in diverse disciplines -
including epidemiology, economics, and statistics” to study “how medical
resources are distributed and used in the United States.” In addition to the
“Major Topics” page on
Medicare reform, see the Interactive
Data Base tools that allow users to create graphs, tables, and other
displays using the large healthcare database the project has assembled. Health Affairs is a highly
regarded, peer-reviewed policy journal that “explores health policy issues of
current concern in both domestic and international spheres.” Not all of the
site’s content is accessible without a subscription, but “tables of contents,
abstracts, e-alerts, full-text searching, and access to a selection of full-text
content” are freely available to the public. Take a look at the
Medicare
references and consider subscribing to the “e-Alerts”
service, which will notify you when new online content is posted in your areas
of interest. The University of Michigan’s Health
and Retirement Study is a huge “longitudinal study of health, retirement,
and aging” sponsored by the National Institute on Aging. The project site has an
impressive bibliography of resources based on the data collected by the study.
Many datasets are
available to researchers and the public upon
registration. Other data
is restricted, but may be made available to researchers under certain
conditions. Follow this link for detailed information about
Medicare-specific data. Health Hippo is an
enormous “collection of policy and regulatory materials related to health care,”
with attitude and a sense of humor to boot. While the site is in desperate need
of updating and has many broken links, there are enough working links to current
and sometimes offbeat information that Health Hippo is worth a look
nevertheless. The Kaiser Family Foundation’s
Medicare Policy Project
“conducts research and analysis on current Medicare policy issues, monitors key
trends, and produces fact sheets, resource books and reports to inform policy
discussions.” The publications available on its site offer an
extraordinarily rich and up-to-date array of fact sheets, charts, tables, and
analyses. In addition, Kaiser has just launched a new site,
KaiserEDU.org, aimed primarily at health
policy students and faculty. Judging by its initial “issue modules,” “reference
libraries,” and “tutorials,” this site promises to be an outstanding,
user-friendly policy resource. See the issue module on the
new
prescription drug benefit and the
Medicare
reference library for a large and balanced array of text and multimedia
resources produced by the Kaiser Family Foundation, its grantees and partners,
and other relevant policy and polling organizations. The National Library of
Medicine (NLM) site has an outstanding set of links to “Related
Health Services Research Web Sites.” While there is no Medicare topic per
se, pay special attention to the sections labeled “Epidemiology
and Health Statistics,” “Funding,”
“Health Policy and
Health Economics,” “Informatics,”
and “Public Health.”
I am familiar with many of the sites included here and explored some new ones
while preparing this column, without even scratching the surface. This is a
cornucopia of authoritative information that addresses a variety of
Medicare-related policy issues and tools. While you are visiting the NLM site, take a look at Dan Melnick’s useful
tutorial on “Finding
and Using Health Statistics.” Aimed at librarians, it is also suitable for
others who may not be familiar with the range of resources and tools available
to the statistically sophisticated as well as the mathematically challenged. The Presidential candidates’ official web sites offer policy statements on
everything under the sun, Medicare included. President Bush’s web site covers
Medicare in this
health issue brief and in transcripts of some two dozen speeches and
ceremonial
occasions. Senator Kerry’s site has a “four-step
plan” for Medicare” and a
prescription
drug plan for seniors, along with coverage in accounts of speeches and
video clips. RAND Health calls itself “the
nation’s most trusted source of objective health policy research.” Among its
main research areas are “Healthcare
Organization, Economics, and Finance” and “Law
and Health.” See, for example, the 2002 study, “Costs of a
Medicare Prescription Drug
Benefit: A Comparison of Alternatives.” The Robert Wood Johnson Foundation “seeks
to improve the health and health care of all Americans” by funding projects that
“concentrate on health care systems and the conditions that promote better
health.” Among other Medicare-related resources on the RWJ site, see the report
produced for RWJ by the Institute for the Future,
“Health
and Health Care 2010: The Forecast, the Challenge.” AARP provides consumer-friendly information
about the
MMA changes, in a manner that appears to distinguish clearly between facts
about the law and the organization’s controversial policy advocacy in this
arena. Articles from the AARP member bulletin are collected
here. A separate Policy and Research
section of the site offers research data and
analysis and a summary of AARP’s
advocacy stance.
The Centers for Medicare and Medicaid Services
(CMS), formerly known as the Health Care Financing Administration (HCFA),
provides this link to the full text of the
Medicare Prescription Drug, Improvement and Modernization Act of 2003. CMS
refers to the new law as MMA, a
practice I will emulate for the remainder of this column.
CMS, a division of the Department of
Health and Human Services, administers Medicare, Medicaid, the State Children's
Health Insurance Program (SCHIP), the Health Insurance Portability and
Accountability Act (HIPAA), and the Clinical Laboratory Improvement Amendments (CLIA).
The large and complex CMS site addresses at least four distinct audiences:
healthcare providers and
businesses;
government agencies at various levels; the media; and
consumers.
The “official U.S. government site for people with Medicare,”
Medicare.gov, may be accessed directly or
through a link from the CMS site. As of April 29, the site will add an
online calculator so that Medicare
beneficiaries can compare the cost of drugs using the various discount cards
during the transitional period that begins on June 1 and ends on December 31,
2005.
Medline Plus is a site created by the
National Library of Medicine to assist consumers and other users in locating
authoritative health information. Links are prescreened for
quality and
accompanied by user-friendly features such as glossaries, tutorials, reading
level indicators, Spanish-language content, and images produced by
A.D.A.M. A large portion of the
Medicare information
accessible through Medline Plus is drawn from the
CMS site, but Medline Plus is far better
organized, more visually appealing, and easier to use.
